myrovlytis trust

The Myrovlytis Trust is a charity founded in 2007 to drive research, provide support and improve outcomes for rare disease patients and their families. The initial focus is on two conditions (Birt-Hogg-Dubé Syndrome and Osteosarcoma) where there are clear clinical unmet needs. By providing information and support to patients, raising awareness among clinicians and the public and strategically funding research, the Myrovlytis Trust aims to transform the outlook for these rare diseases.

The Myrovlytis Trust has two patient-focused websites, the BHD Foundation and Osteosarcoma Now. The BHD Foundation provides support and information for people with BHD across the world. Osteosarcoma Now is a global resource for people with osteosarcoma and includes a curated clinical trial database.