VHL ALLIANCE

The VHL Alliance (VHLA) is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by von Hippel Lindau disease. VHLA is a 501c3 non-profit organization founded in 1993 by three families with VHL to share experiences, learn from one another, support one another, and help the doctors understand and treat VHL, and improve life for patients. Today, the VHLA is the preeminent resource and clearinghouse of patients, caregivers, researchers, and the medical community.